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Hi everyone
2 years ago  ::  Oct 02, 2012 - 12:03PM #10
copperhairpin
Posts: 861
type2

KJGentile,


 


I missed your post about being afraid to eat and I definitely understand how that can throw you when you are first diagnosed.  Have you seen a diabetic educator or a diabetic endocrinologist yet for a meal plan to start you off?


There is so much to learn but you don't have to be afraid to eat.  You will just learn to eat like everybody in our society is suppose to eat.  There is nothing really that is an official diabetic diet.  You can learn a lot by exploring every nook and cranny of dLife and you can ask questions on any forum.  The high traffic type 1 and 2 clubhouses can really help you depending on your type.  We have some that have dealt with diabetes very successfully that can share their wisdom with you.


I hope you find alot about portion control on dilife and eventually learn all the little details and facts that make this easier for all of us.  What was your initial A1c and has that been a long time?


Sally

Sally
2 years ago  ::  Oct 01, 2012 - 9:07AM #9
copperhairpin
Posts: 861
type2

 


I can definately understand the disabilities that you have.  I do not have all the conditions that go with diabetes but my companion does.  He even had a blockage in his intestines that almost cost him his life and he had most of his colon removed because of it.  He has severe pain in his legs, ulcers, and loss of balance because of his lack of feeling in his feet. Eyes have been a continual problem for him for sure.  I know how difficult it is to accept a disability.  I know I had a horrible time adjusting to it.  For the longest time I was in denial that I actually qualified and thought there was an error done somewhere. I have since accepted it.


It is hard to not work isn't it?  Especially when we have done it all of our lives for sure.  There is this need to prove oneself when you already have.  I admire your desire and how you continue to try very much.  The economy has been in a mess for a long time and I think it will possibly continue to do so.  I am fighting the urge to do a political rant. *smile*  Sometimes we just have to wait things out.  Then there is the issue that if we have medical issues we will makethe insurance to pay out a lot for us and they question if we will be able to do a good job without taking off alot.


Personally I am stuck because I have Medicare.  I got it early and thank God I did.  I am on 17 prescriptions if you count my insulins and then have prescriptions for syringes and test strips on top of that.  I suspect that I will be using inhalers for now on too because COPD has been added to my diagnoses.  So I could never afford to work even if I could.  It can be discouraging but those things are part of reality for some of us. 


Thank you for the well wishes for improvement for my mental illness.  You are right that the medications, and various treatments have improved vastly and so have I.  Now I am joining a support group and I have a therapist once again.  I can only see my treatment improving in a very positive way.  I wish my husband Paul could have lived to see how well I am doing.  But we can't change the past.


I know how much support our spouses give and I know that they also need a support system and possibility of personal and family therapy.  You sound like you were a wonderful husband and father.  IT is hard and you would be surprised how many times love ones abandon the mentally ill to save themselves.  It takes a special family to hold it together and possibility get stronger through adversity.


I think I got diabetes because of one of my psych meds, and stress added to it.  There are quite a few things that can trigger it.  Research connects alot of connections with other conditions but so far I don't think they are much closer to finding the cause or cure of it.  I don't think it will happen in my lifetimes but I can be wrong.  I really believe it will come in my children's or my grandchildrens life times, but it will come.


I am so sorry that you have diabetes and dealt with it so long.  I know there are diabetes that have lived with it until they are very elderly.  They are very impressive and inspirational to the rest of us.


Right now my readings are out of control because I am taking Chantix to try to stop smoking.  I am failing at it and I suspect when I see the doctor today he will want me to stop taking it.  I am discouraged but I can't let the numbers to stay in mid 200's or higher either.  I am already beginning to have pain in my feet and I don't know if it will go away later.


I have rambled but I like your personality very much.


Sally


 

Sally
2 years ago  ::  Sep 29, 2012 - 12:07PM #8
goofybird
Posts: 15
type1

Hi Sally, and thanks for sharing. .. My disablity stems in part from the diabetes. Aside from suffering extreme highs and lows (I have antibodies to insulin as well), I have neurological problems both internally and externally. I have difficulty holding a pen/pencil, extreme pain in legs, digestive issues, that sort of thing. I was also in a car accident two years ago, well three now that didn't help matters either. Also had issues with my vision as well, and although much of it has been corrected, there's still some clearing to do after suffering a recent bleed. Currently hoping not to have to go through a vitrectomy. I'm lucky though. Had I not had the previous lazer surgery for the retinapathy, I would surely be totally blind by now. So well, we all know how the job market is. Hard enough finding suitable employment to live on when your healthy, let alone when you have a few setbacks. And even though everyone tells me enough is enough, I still apply for jobs, however, in the last 7 years i've yet to get an interview anyways. .. Cooking for one? First thing I learned to do was partition out larger portions of food via those small tupperware containers, then freeze em. Yeah, I know, some things aren't very good after their frozen, but then many are. I also like some of the Birdeye steamfresh products too. Some, like the multi-grain rice, are actually pretty healthy. Others, like the cauliflower and garlic seasoned, might, for some people, contain a bit too much salt. .. Regarding mental illness, .. my wife was diagnosed with postnatal severe schizophrenia at the age of 24. Although initially quite severe, years later, along with advancements in medication and psychiatric protocol, her outlook on life had since definitely improved. From my understanding, and i've been through numerous programs, classes, and support groups, getting better has become more attainable than it ever was before. .. At any rate, I certainly hope in your case, life gets better too.  

2 years ago  ::  Sep 29, 2012 - 11:07AM #7
copperhairpin
Posts: 861
type2

I am definitely sorry to hear that your wife is no longer there.  I do understand the struggles that go along with that.  I have been a widow twice and I will never forget the struggles of being alone.  It also made me frighten about my diabetes and I know you say you are a brittle diabetic.  That makes it so much more complicated I know.  I have never really learn how to cook less than what is needed for a full size family.  My kids are adults too.  It takes some creativity to cook for one or two.  I hope that you are up to the challenge. 


So glad that you have joined dLife.  We definitely have an understanding of it personally and as a group of two types.  There are negative things about diabetes but there is alot of hope and reachable goals with it too.  I do understand the health problems that you have gotten from diabetes.  My companion has had quite a few treatments for his eyes.  At a earlier time he would be blind now. 


Is it too personal to ask how you are disabled?  I am disabled because I have a mental illness. *sigh*  But life does go on and we adapt don't we?


Sally

Sally
2 years ago  ::  Sep 28, 2012 - 8:09PM #6
norm57
Posts: 312

hello, how are you, how you doing, welcome

2 years ago  ::  Sep 28, 2012 - 12:56PM #5
goofybird
Posts: 15
type1

 Thanks everyone. .. As of 1976 when I was first diagnosed with type one diabetes, there really have been some big changes. Certainly, always something new to learn. I'm hoping that despite the ever increasing incidence in diabetes cases, someday there will be a cure. Perhaps genetics or cell implants? I don't know. .. Back when I first began taking insulin, it was the beef/pork variety. Every morning 48 units of NPH with an additional 15 units of regular drawn in on top was the doctors prescription. Throughout the day about an hour after every meal were litmus tests utilizing urine and water, the results generally far from being helpful. .. What a difference there is today! .. As for sharing, im not sure there's much I can contribute that hasn't been spoken of already. Having been diagnosed with true brittle diabetes, management for me had been for a number of years somewhat difficult, even when under institutional care. This, coupled with several early years of not even having health care, you could imagine by now i'm feeling the effects of various complications. .. Good thing. By staying active both physically and mentally (probably my best advice here), i've managed to hold up fairly well. Other friends of mine with the more managable variety, chose to indulge the excesses, which in turn, is why they are no longer with us.


 So now the reason why i'm here. .. I have great difficulty speaking to friends or relatives about my diabetes. And most everyone I know who has it has either nothing positive to say, or no clue except to share horrible advice and the fact that diabetes is what led to someones early funeral. Even my doctor makes it a point to go over all the impending contingencies as tho a reminder of whats sure to come. Matter of fact, my first doctor never expected me to reach the age of 30 let alone 54. And well, although the numbness and associated burning in my hands and feet are well imbedded, and my eye's have been fixed several times with lazer beams, I am still here. Disabled. Wife is gone. Daughter married and successful. And for some reason its tough living alone with diabetes.

2 years ago  ::  Sep 28, 2012 - 11:45AM #4
kjgentil
Posts: 4
type2

Hi


feel a little lost and overwhelmed. Just diagnosed and scared to eat


HelpEmbarassed

2 years ago  ::  Sep 28, 2012 - 10:13AM #3
copperhairpin
Posts: 861
type2

You definitely would have learned alot about diabetes since you have been one since the 70s.  But there is always something new to learn and people to link with.  Maybe you will share some of what you know with others.


There is a type 1 clubhouse, but please feel free to read the type 2 clubhouse posts too.  All diabetics are in this together.


Sally

Sally
2 years ago  ::  Sep 28, 2012 - 9:58AM #2
yourfriendmo11@aol.com
Posts: 22

Welcome it is a good site.

2 years ago  ::  Sep 28, 2012 - 7:05AM #1
goofybird
Posts: 15
type1
I've been a type one diabetic since 1976. .......Smile
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