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Things that people say that make me want to...
2 years ago  ::  Feb 17, 2013 - 11:59AM #12
deafmack
Posts: 201

When my doctor or another says that diabetes can be reversed I say I know it can diabetes becomes setebaid. There I reversed diabetes.


People just walk away shaking their heads.  I get so tired of doctors thinking if a person tests around 3 or 4 times a day they are


testing enough. There was a person on another forum who told Medicare, "What do you want to pay for? More test strips or an amputation?


She got the strips she wanted.  I am going to be old enough to go on Medicare soon and if my Doctor says I don't need to test as often as I do,


I am going to ask her if she wants to pay for the strips or the complications I will get from not testing as often. I really believe that testing is


an vital thing for those who have diabetes and I don't care if the person has type one or type two.

2 years ago  ::  Feb 12, 2013 - 11:43AM #11
momclaws
Posts: 4

I am an out-of-control type I diabetic who gets tired of some of the stupidity.  For me, I am often ill and when I return to work, people have said nice to see you back from your vacation.  I just want to say you take a blood sugar of 600 and see if you feel like you are vacation.  ARGH! 

2 years ago  ::  Jan 10, 2013 - 8:44PM #10
goofybird
Posts: 15
type1

 Thank you for your replies. .. I am currently reviewing my options. As for gaining advocacy, I may have to travel a few miles (50) into Cleve. Right now though, i'm afraid to go anywhere for fear of contracting the flu. .. Thank gosh I have unlimited phone service as i'll be making quite a few calls tomorrow.  

2 years ago  ::  Jan 10, 2013 - 7:59PM #9
Alicia
Posts: 720
type1

ANY doctor who does not think that ALL type one diabetics should be ideally testing MINIMUM 6 times a day, preferably 8 or more is a COMPLETE QUACK!! Definitely find yourself a new doctor if at all possible!! (For that matter I would report this doctor's HORRIFIC and life threatening lack of intelligence to the state licensing board) There are a few things that really light me up and this is one of them! you NEED to have enough strips to atleast test before and after meals!! that's assuming you dont ever go off corse and need to test in between! Any doctor that wont authorize ANY insulin dependant diabetic to test at least 10 times a day (leaving them extra strips for emergencies, errors, testing before driving, after workouts, strange highs lows etc) is not only ignorant and dangerous they are typically JUST PLAIN LAZY! they dont want to do a little extra paper work for the approval from Medicare. If you have a diabetes center I'd visit them about this issue, and if not visit your local hospital and ask to speak with a patient advocate.

2 years ago  ::  Jan 10, 2013 - 5:11PM #8
jennagrant
Posts: 1,283
type1

You need to get a different doctor goofybird.  I'm have never heard of a doctor not seeing the need to as many tests as possible. 


There are so many variables that affect blood sugar, it's imperative to test often.  And in the long run it saves insurance providers money because you will have better control and be less likely to have complications. 


 

2 years ago  ::  Jan 10, 2013 - 9:13AM #7
goofybird
Posts: 15
type1

 According to my doctor, I need not test my blood sugar more than 4 times a day. According to my medicaid provider, I need not test my blood sugar more than 4 times a day. .. In fact, I DO need to test my BS more than 4 times a day. Why? Having had type 1 for more than 35 years, my body no longer reacts to insulin the same way it did when I first started using it. Mostly, i've been told, due to a build up of antibodies towards insulin. Second, I no longer digest food quite as well as when I was younger. Some of this may be from neurological damage. .. So whatever I can't get through my doctor, I either purchase from Ebay or Walmart. .. I test at least 8 times a day, otherwise, I have no control.

2 years ago  ::  Jan 08, 2013 - 12:25PM #6
jennagrant
Posts: 1,283
type1

I've had type 1 since I was 4-years-old and people have always told me it can be reversed with diet and exercise.


The misinformed comments are frustrating, but what really gets me is I've heard the EXACT same comments for the whole 35 years I've had diabetes.  You think people would be more knowledgable, but they just aren't.

2 years ago  ::  Jan 05, 2013 - 8:13AM #5
Alicia
Posts: 720
type1

btw ganymede1214 there is no such thing as testing "too much" or "too often" newly diagnosed persons can test every hour on the hour! anyone can! I've been diagnosed for years and i still test 8 to 10 times a day when i am making big changes or really tightening down control.

2 years ago  ::  Dec 29, 2012 - 9:42AM #4
Suzanne
Posts: 6

Sympathy. Because I became type 1 at the age of 62 everyone assumes I'm type 2. They are always telling me if I exercise and eat properly it will go away. It isn't going anywhere. and it doesn't seem to matter how many times I explain that I didn't cause this by eating the wrong things, being overweight, or sedantary-I wasn't any of those-they still give me articles on reversing it, tell me what I should eat and do. I guess my favorite is when someone discovers I'm diabetic is 'But you're not overweight!' Or maybe it was the geezer who saw my pump and made a comment about having 2 cellphones. Most days I just blow them off, some days I'd rather blow them up.


2 years ago  ::  Dec 26, 2012 - 2:04PM #3
ganymede1214
Posts: 1
type1

I am just recently diagnosed so I test more often than I "should". But If I didn't test I wouldn't have known I was taking too much insulin. I feel like yelling at people when they pick on me because I test. "DO YOU HAVE TYPE 1 DIABETES?" Usually they say "no." I feel like they think they know what I should do and they don't. Thankfully, my twin has type 1 now for year or two and she says its normal to want to know how exercise and eating certain food and how the insulin affects me. I went from 209 to 60 in an hour due to my "sliding scale" I now and on half of the insulin. I just can't believe they would have rather me not check when I feel sick. :( People are clueless.

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