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So Frustrated
4 weeks ago  ::  Feb 07, 2015 - 7:20PM #14
Posts: 2

I started insulin at the age of 4 and on insulin for 44 years now.  I do eat Rice & Wheat most of the time but I am able to control my sugar levels well.   I always measure carb count before taking insulin.  Always, my A1C level is around 6.4 and never gone higher than that level. 

13 months ago  ::  Mar 14, 2014 - 1:48PM #13
Posts: 1

I have am Organic Farm & been Type 1 for 33 years, in the United States people mostly eat products made with refined Wheat flour (the seed itself has been created to digest quicker). Corn flour does not digest as quickly and items like Chick-Pea flour is mostly protien with little Carbs, most Americans use only White or Wheat flours and don't realize how many other types can be found in most Supermarkets. I make Corn-Muffins sweetened with Stevia that don't raise my Blood-Sugar at at, they have no sugar or wheat. As Diabetics we need to look at food with a different mind-set, My Grandfather was a Baker and so am I but because of being Type 1 since I was 13 I learned to change how to cook and bake for stable Blood-Sugar levels. 

2 years ago  ::  May 07, 2013 - 12:12PM #12
Posts: 6,988

We all know or should know by now  that wheat turns to sugar.    Wheat  can and does affect many of us,     I know I can handle very and I mean very little    wheat. 

2 years ago  ::  May 07, 2013 - 10:39AM #11
Posts: 4

Try eliminating all wheat products from your diet.  My A1C in February was 7.7 when in the past the highest it had been was 7.2 but most of the time around 6.8.  I'm not on meds and have only been trying to control my diabetes with diet and exercise.  My regular doctor is treating my diabetes said if it isn't under 7.0 this month when I go the I will have to go on medication.   My morning fast bg was usually between 135 and 165.   When I went to my GYN in March and told him about my A1C being 7.7 he ask me to keep a food diary for two weeks and come back in.  I did that and he mark off Almost everything I had on my diary.  It was then that he ask me to eliminate all wheat products from my diet and to read "The Wheat Belly" book.  I have not had any wheat products in 2 weeks and my numbers I have been so much better.  I have lost 5lbs and 1/2 inch off my waist.  I feel better and have more energy then I have had in a long time.  It will be hard at first, but if you can stay with it you will probably see a big difference in your numbers.    I wish my regular doctor had taken as much interest as my GYN, but I have been his patient for 28 years and he is just the best doctor I have ever known or had.  He really cares about his patients.  I hope this helps some.

2 years ago  ::  May 03, 2013 - 3:44PM #10
Posts: 169

Furball I also agree with you but my experience with the dietitian was very helpful. We talked lean meats,healthy carbs ,lots of veggies, and keeping my milk and oatmeal. These are the things I love ,I think this helps keep me on course. Plus medication adjustments can make a big difference in what our numbers look like.  I do test 4-5 times a day, my numbers tell my story.  Nancy13

2 years ago  ::  May 03, 2013 - 11:47AM #9
Posts: 39

That's awesome, Faith!  I have so many things I used to do that I can't anymore because I'm too heavy (skating - if I fall, it's hard to get back up without anything to hang on to, riding rides - issues with lap bar, etc).  I was always overweight, but when I turned 18, I developed Polycystic Ovary Disease and I gained 100 pounds over 2 years and never took it back off.  Nothing helped.  Nothing worked.  The diabetes goes hand in hand with that,a nd the  PCOS along with the gallbladder just screwed me up.

Two hours post breakfast I was right back where I was before, so something is working.

I'm so angry at everyone who chalked me up as a failure that I'm bound and determined to prove them all wrong.  I don't want to be standing on the sidelines at the amusement park when everyone else is riding and having fun.  I want to be able to go skating if I feel like it.  And I'm going to try my darndest to stay motivated.  You've given me some inspiration that it can be done!  Wink

2 years ago  ::  May 03, 2013 - 11:24AM #8
Posts: 212

One of the biggest challenges with diabetes is this sense of powerlessness that comes when the numbers start to change on us without any reason.  Sometimes we can be doing all the right things and still they jump or drop.  At one point I was using far to few carbs and my numbers were higher.  My dietician told me that it was likely that my low carb diet was causing my liver to dump sugar.  Lately I have been able to keep things pretty stable but that can change with stress, being tired, not getting enough exercise etc.

I think the other thing that is hard with diabetes is that people are very quick to blame..."if you would only exercise more", "clearly you have been cheating on your diet", you just have to learn to be more careful"  and the list of ignorant statements goes on.  People often don't realize the work that most people living with diabetes have to do in order to stay healthy and keep their numbers in the "normal" range.  That kind of stress can really weigh on us over time.  Already I get tired of it sometimes and wish things were different.

CJ don't get discouraged.  First off, gall bladder can really mess with your systems, make you feel really sick and change your digestion system etc.  It takes time to get over the surgery and start feeling better.  Sometimes we go through times when it is harder to be compliant to our diet and lifestyle required for best diabetes management.  The key is to get back on track again as soon as we can.  YOu have had a wake up call and are now committed to getting back on track.  They med's will take awhile to take affect but should help the situation.  NOw you need to get back to the exercise and eating well.  Don't beat yourself up or blame yourslef...that only makes things worse.  Love yourself and look after yourself just like you would anyone else you love. 

Diabetes is a progressive disease.  It may very well mean that you need to change your meds and regime again to best work with your current condition.  This does not mean you are a failure.  Insulin might be required.  That doesn't mean you ahve been a bad diabetic.  It means that things have changed and your body needs more help to stay regulated.

I hear you about the bypass surgery.  Most people I know that have had it have had more harm than good and they have put on weight again.  The bottom line is that we need to deal with the causes of our relationship with food and our weight.  Otherwise we still find ways to comfort eat and continue in the habits that got u heavy to begin with. 

I have lost 135 lbs. over the last 5 years.  It is a healthy weight loss both  physically and emtionally.  I am learning to love myself, care for my body and soul.  As a result I am not killing myself with food :)  In the long run I am developing the habits that will help me to stay active, healthy and lighter.

Take care of you!


2 years ago  ::  May 03, 2013 - 8:48AM #7
Posts: 39

My fasting this morning was 186 - first it's been under 200 in eons (the day of the A1C, it was 285).  But I can't seem to get my post supper numbers below 200 no matter what I eat.

I'm awaiting a call from a dietician with diabetes experience (a lot of legwork on my own) which my insurance will pay for.   Hoping she can provide clues.

2 years ago  ::  May 02, 2013 - 11:21PM #6
Posts: 871

I am so glad that you posted what you did Furball.  I see the truth in what your wrote.  I do appreciate the course I was given for six weeks to learn to manage my diabetic eating, but after that I have been pretty much on my own.  I do agree that doctors sometimes think they are gods.  I have had meds that have taken my numbers up and my pcp would just give me a smirk when I tried to talk about it.  So I use my doctor for my meds, insulins and supplies and pretty much handle things on my own.  I know the scale for my insulins and I have the options of raising them or lowering them.  I take my orals daily.  I have pretty much have learn what is going to send my numbers sky rocketing.  I know things about my body rhythmns and I know I have to eat before 3 in the afternoon or I will have a horrible drop.  I know exactly how many carbs I can handle.

It is a hands on experience just like you said.  IT definitely ends up in our court to eventually work it out.  Just got to feel it out and reason it out to the best of our ability and face it one day at a time.  When we stumble we start over and when we do well I think we should all be able to shout it from the roof tops.  We are here to give encouragement and a human touch to a condition that can ruin our lives if we can't figure it out.  We are also here to share what we know.  I think we are also here to be a form of friend.

I like you furball very much.


2 years ago  ::  May 02, 2013 - 1:56PM #5
Posts: 6,988

This may make several here not to happy but here goes.     The proof is in the meter,    I have seen 3 dieticians and for me they were a big waste of time and money.     Carbs turn to sugar is pretty simple,    if you have cut back as far as you can then other meds need to be worked  on.     Diabetes is  a hands  on disease,   doctors do little as you have seen.     They think when the bg goes up  its our fault,  surely were doing something wrong.     They  think  they are Gods or something,     I been there before I brought in my food log  but the staff lost it.    So  guess who got blammed and  not only that he said someone    that  would not  do what he said    he would not see them again.        I told him if your dumb staff was  good it would not have happened.      Use your meter to help you,  doctors hand out meds and the rest is up to us. 

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